Carter's Care: fundraiser brings big crowd for boy with rare genetic condition
CEDAR RAPIDS, Iowa (CBS2/FOX28) —
On most days, the parking lot of the Edgewood Road Buffalo Wild Wings is packed with cars.
On Wednesday, the vehicles had a visitor... well, really, visitors.
Kiddos jumped joyfully in the two bouncy houses, touring a Cedar Rapids fire truck, and getting pictures and autographs with some of their favorite athletes from the Cedar Rapids Titans and Rampage.
The festivities were all part of Carter's Care, a grassroots fundraising campaign sparked by a father's will to have his son's story heard.
Carter Stolfus is a three-year-old boy with ectodermal dysplasia, a genetic condition affecting only one in roughly 10,000 newborns.
As a result, Carter has fine hair, dry skin, only two teeth, and no sweat glands.
Carter's father Jordan said his son has been targeted by some on social media, who say Carter shouldn't be allowed out in public due to his physical appearance.
Jordan has been speaking out about his son's condition, aiming to raise awareness about ectodermal dysplasia.
"My son may look a little different, but he's a normal three-year-old boy, just like every other kid," said Jordan.
Jordan's former employer, Buffalo Wild Wings on Edgewood Road Southwest, reached out to the Cedar Rapids dad about a possible opportunity to do a donation drive.
September 13 became the official date of Carter's Care, a fundraiser geared toward raising money for Carter's medical expenses and the National Foundation for Ectodermal Dysplasias.
Ten percent of the sales from the southwest side restaurant on September 13 will go toward Carter's Care, as will the proceeds from a silent auction featuring items adding up to more than $750 in retail value.
Jordan is also selling #TeamCarter bracelets for $5.